Helpful ResourcesDownloadable Resources
& Videos
From diagnosis to treatment and beyond, here you’ll find the resources you need to help you and your child along the treatment journey.
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Downloadable resources
Some of these resources can also be ordered at no cost to you by visiting the Request Resources page.
Braving Neuroblastoma Resource Guide
Utilize this extensive guide to discover the educational resources available to help support you on your neuroblastoma journey.
Fast Facts for Your Child
Be sure those caring for your child have all of the important medical information that they need in case of an emergency.
Questions to Ask Your Doctor
Prepare for conversations with your healthcare team and ask important questions about your child’s care at each step of the journey.
Coping with Childhood Cancer Guide
A step-by-step guide to help set a good foundation for you and your child's mental health throughout your journey. This guide takes you from initial diagnosis to after treatment, with considerations to help you cope with childhood cancer and advocate for resources that may be available to you. Use this guide as you navigate the childhood cancer journey.
The Big Adventures of Little Skivolo
The Big Adventures of Little Skivolo is a book about what a child can expect when they are diagnosed with neuroblastoma. You can use this book to help explain neuroblastoma to your child, siblings, and community members. Skivolo learns about the different tests he will have in the hospital and the people on the healthcare team who look after him.
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The Next Big Adventure of Little Skivolo
The Next Big Adventure of Little Skivolo can help your child understand antibody therapy for neuroblastoma. The book follows Skivolo as he begins antibody therapy and learns about what the medicine does inside his body to fight his cancer.
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Little Skivolo’s Big Book of Fun
Little Skivolo’s Big Book of Fun is an activity and coloring book for patients and their families. The coloring activities, games, crafts, and puzzles in this book can keep your child and their siblings engaged during hospital visits.
Zara Takes Off
Zara Takes Off is a book about the transition a child and family go though once treatment has finished. Zara learns what to expect with follow-up care while she launches into new adventures.
Look for a special foreword from Leah Still, daughter of former NFL player Devon Still. Just like Zara, Leah has finished her neuroblastoma treatment and shares details about her journey.
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Treatment journey calendar
This calendar helps families organize dosing schedules, record milestones, and decorate memorable dates with fun stickers.
Neuroblastoma Parent Videos
Find hope through one family’s story of resilience in the face of neuroblastoma.
Neuroblastoma Clinician Videos
Learn more from a pediatric oncologist, nurse practitioner and social worker as they discuss points throughout the neuroblastoma journey.
Video Title: Caring For The Caregiver
Description: Hear from a social worker and nurse practitioner on the importance of self-care during your child’s treatment journey.
Neuroblastoma parent conference videos
Explore the video link below to watch neuroblastoma experts discuss points in the neuroblastoma journey.
Links for community support
Discover more helpful resources below:
Managing neuroblastoma treatment costs and insurance
The cost of cancer treatment can often be a source of stress for families. It is helpful to meet with the oncology social worker to discuss your concerns. They can help you assess your financial needs, help evaluate your health insurance coverage, and connect you with resources like:
Managing neuroblastoma treatment costs and insurance- Family and medical leave (also called FMLA)
- Many working caregivers may need to be away from work for periods of time to take care of their child. Your social worker can help navigate leave
- Social Security
- Neuroblastoma treatment can be a long journey. Your social worker can help with the application process to determine if your child is eligible
- Other financial resources
- Medical bills can add up quickly. If you do not have health insurance, your social worker may help your child get health insurance benefits. However, health insurance doesn’t always cover all costs. Your social worker can help find other resources, such as co-pay or medication assistance
- There are local and national organizations that also help with financial concerns, ranging from medical cost assistance, housing assistance, and travel assistance, to general financial help. Your social worker can help connect you